White Crow Workshop

The Inadvertent Carer

Still visiting Mum…

In 2010, both my parents and both my in-laws were fit and moderately well. By the end of 2013 we had lost my Mother-in-Law to Bronchiectasis and my Dad to a series of heart attacks, minor strokes, vascular dementia and, ultimately, pneumonia. Over the next few years, my Father-in-Law’s health began to fail and he became increasingly dependant on my wife (mostly), a small army of neighbours and volunteers and myself to maintain his independence.

In January 2024 the cause of his worsening breathlessness was found. He was diagnosed with Mesothelioma, a nasty and aggressive cancer linked to exposure to asbestos. When the consultant spoke with him about his options for treatment he did a quick test to make sure he had the capacity to make serious decisions. Subsequent detailed tests showed just how severe his dementia was too.

My Mum, though, seemed to sail through without any major dramas until early 2023 when a series of catastrophic events – pneumonia, sepsis and then a series of strokes before she was discharged from hospital – left her needing medical assistance 24/7 and confined to a nursing home.

My somewhat flexible working arrangements allowed me to be my Mum’s most frequent visitor. Recognising that she wasn’t just my Mum, I wanted to keep my siblings up to date with her progress. A WhatsApp group seemed the obvious answer. Far more convenient than a series of phone calls, texts or whatever every day.

The record of Mum’s physical and psychological condition turned into a record of her passage through the NHS and Social Services systems and nursing homes too. The staff, patients and residents that I met along the way became my social life so they figure prominently.

Initially, I was experiencing frustration at not being able to work in my planned creative outlets. But I soon realised that providing the record WAS my creative outlet. It was also extremely therapeutic and helped me process and unpack what I was having to deal with.

When the record began to get a wider audience I was encouraged to make it public as it might be useful for people going through the same experience.

Publishing it here seemed to be the obvious first step. If only to explain to people who were expecting to see more wood, stone and photography projects why my social media accounts had gone so quiet.

You’ll find links to each day’s update below…

Sunday

Sunday

Sunday A long day today. Not sure what caused the early start but we all woke at 4am and I was the only one who...

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Saturday

Saturday

Saturday We treated ourselves to a quiet day today. Lesley did the estate admin stuff that needed a brain and I went...

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Friday

Friday

Friday Another day at Lesley's dad's house today. With the errands that we had to run before getting there I'd been...

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Wednesday

Wednesday

Wednesday Another standard day with no brain for us today. It does worry me that people who have cared for relatives...

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Monday

Monday

Monday The Dog has, at last, allowed me to have a look at her injured paw. My initial concern had subsided once I had...

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Thursday

Thursday

Thursday Springtime is difficult in our house because it means it's time for The Dog to have her annual vaccination...

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Saturday

Saturday

Saturday Another day at Lesley's dad's house. Another day where we had to deal with Lesley having No Head. The Dog...

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Thursday

Thursday

Treasures The Dog was given a rest day today after her exertions yesterday. Not that she seemed to need it. No sign of...

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Wednesday

Wednesday

Wednesday Not a great start to the day mental health-wise today. We started off with Lesley getting an unexpected...

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